Leveraging technology for the assessment and monitoring of fragile infants with complex congenital heart disease in the community

We would like to invite you to take part in this exciting 6-month project, that will devise and develop a prototype mobile application using the Congenital Heart Assessment Tool for parents of infants with complex congenital heart disease to assess their baby at home after their first cardiac surgery.

You have received this invitation because you are a parent or carer of an infant with complex congenital heart disease, a member of Little Hearts Matter or a healthcare professional with experience of working with these infants. We are hoping to recruit 25-30 participants.

What is the purpose of the quality improvement project?

The overall aim is to empower parents of infants with complex cardiac conditions to make life saving decisions wherever they are, using mobile application-based information and guidance, held on their smartphones

Who is undertaking the quality improvement project?

Dr Kerry Gaskin, Associate Professor of Nursing, Three Counties School of Nursing and Midwifery, University of Worcester

Dr Chris Bowers, Principal Lecturer in Computing and Head of Department of Computing, University of Worcester

Professor Jo Wray, Health Psychology, Great Ormond Street Hospital for Children NHS Foundation Trust, London, WC1N

Suzie Hutchinson, CEO, Little Hearts Matter, Birmingham

Phase 1 – Focus group (Sept-October 2022)

Aim: to ascertain parents and healthcare professionals’ perspectives of the design of the mobile application

HCP Focus group

date a) Thursday 29th September 330-430pm via MS Teams

date b) Monday 3rd October 12-1pm via MS Teams

Phase 2 – Prototype Design and Development (November-December 2022)

Aim: to develop the prototype mobile application

Phase 3 – User study (January 2023)

Aim:  to test the prototype mobile application with parents and healthcare professionals to ensure that it meets their needs as determined in phase 1

How do I get involved?

For more information, particpant information leaflet and dates, please contact Kerry on k.gaskin@worc.ac.uk


This project is funded by the NIHR i4iFAST programme (NIHR204727). The views expressed are those of the authors and not necessarily those of the NIHR or the Department of Health and Social Care.